PAH community voices
PERSONAL GOAL SETTING, SELF-
ADVOCACY AND GETTING SUPPORT
Navigating life with PAH isn’t easy, but setting personal goals, advocating for oneself and finding meaningful support can help make a difference. We brought together a panel of people to share their lived experience with this rare disease.
Personal goal setting
Setting personal goals may help in navigating the everyday challenges of living with PAH. Hear the Outnumber PAH panel’s perspective on how establishing realistic goals may help with adapting to inevitable ups and downs.
Self-advocacy
Empowering oneself starts with understanding personal needs and confidently communicating them to others. Hear from people in the PAH community on how to find one’s voice.
Getting support
A strong support team is crucial for navigating any of life’s challenges, and a PAH diagnosis is no exception. Hear from people in the PAH community on the importance of asking for help.
Practicing mindfulness
Practicing mindfulness may help with focusing on the present moment and identifying personal needs. No special equipment is needed, only a quiet space to be present in the moment. Join Michael Galyon, a certified professional coach and mindfulness teacher, in a guided video meditation which may help to alleviate stress.
Find the help you need
Here are resources to help you get answers
to your questions and find your care team.
